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cherold
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self-diagnosed adult

Recently I decided to google around and see if I could find anything on the internet matching my problem of not being able to understand people in noisy places even though hearing tests say my ears are fine and everyone around me doesn't seem to have the same problem.  I found a thread that mentioned CAPD and it sounded like the most likely culprit.  This has been an issue my entire life, and now in middle age I find an explanation but it seems treatment is all for kids, which makes me wonder if there's anything that can be done for a middle-aged guy like me, or if I'm just stuck.  Not that I have any money to look into treatment anyway, but I am wondering if that's even a possibility.


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duranie
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Re: self-diagnosed adult

Welcome Cheroid.  You might want to look into a book called "When the Brain Can't Hear" it's a book by a APD suffering audiologist.  It's a pretty thorough book, it goes into detail about many different ages of people who have issues with APD.  But nothing can be as conclusive as having testing, it's worth the investment.


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cherold
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Re: self-diagnosed adult

My question is, if I were tested, and I did have APD, is there anything I could do about it?  If there's no treatment for it for adults, then it doesn't matter if I have it or not.


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dolfrog
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Re: self-diagnosed adult

Hi cherold

you might find the adult APD forum the OldAPDs wortha visit. The forum has now been running for 9 years, and has APDs from a round the world as members and of all ages from late teens upwards.
Most found out about having APD after their school days, many as parents trying to get help for their children, like me.
the forum is at http://health.groups.yahoo.com/group/OldAPDs/
you need to apply to join but as the owner i will make sure you get in lol.

you might also find the results from our Online Research project "How does APD affect Adults" can be found in the first APDUK newsletters No 1 and No 2 which can be downloaded from
http://apd.apduk.org/newsletter.htm
The first article is "Controlling the Chaos" and the second article is "The Trouble with Strangers"

best wishes

dolfrog


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duranie
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Re: self-diagnosed adult

cherold wrote:

My question is, if I were tested, and I did have APD, is there anything I could do about it?  If there's no treatment for it for adults, then it doesn't matter if I have it or not.
I wouldn't say there isn't treatment for adults, but you'd have to talk to a speech language pathologist that specifically works with CAPD about it.  There are many programs out there that work with different aspects of CAPD, depending on what you're specific diagnosis would be.  I happen to know that Earobics has 3 levels, the last one is meant to go up to adult teaching. 

For peace of mind, and to empower yourself, testing is the best thing.  That way, you can get strategies on how to deal with the problems that come up in life.  What can it hurt to get tested?  At least you'd know what exactly you are dealing with, and how to overcome it. 




Diana


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dolfrog
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Re: self-diagnosed adult

Hi cherold and Diana
Hopefully APD will be a recognised disability as it is now in the UK, which then provide some degree of support and understanding.
The main thing is to be able to identify with others who have also been diagnosed as having APD.
the main advantage is to find out the full extent of the problems that you face on a daily basis and why.
This will vary from APD top APD as no two APDs have the exact same range of problems.
When i first started out learning about APD 10 years ago they were talking about 4 different models of APD, they are now talking about 13 or 14 different models.
So APD is a complex set of issues and you really do need to find out the real nature of the problems some of which you may not still be aware of.
Even though i knew a fair bit about APD when I was finally diagnosed; It was still a revelation to discover the full extent of my APD issues, some of which I had never considered. APDs tend to be very good a t coping with problems as if they are everyday occurrences. Not knowing about your true APD problems can become stressful especially in later life, this happened to my wife, who was the last member of our family to be diagnosed as having APD.

best wishes

dolfrog


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evie
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Re: self-diagnosed adult

Hi, I was diagnosed when I was in my mid-20s.  I've found that while my diagnosis didn't particularly "do" much for me, it did help me come to terms with my disability.  Also, once I had my diagnosis I developed more confidence in asking for the support I needed in work and at school.  I was able to take a lip-reading class which was paid for by my health insurance as well.  And just being able to put a name on my problem was especially helpful.


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cherold
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Re: self-diagnosed adult

I can see getting validation that this is an actual thing is important to a lot of people here, but for me, if there's no treatment I don't much care why I have these problems.  I have a lot of brain oddities - I appear to have both CAPD and a relatively mild case of prosopagnosia (a.k.a. face blindness - it can take me weeks or months of repeated contact to recognize someone's face, but that's a lot better than people who can't even recognize their own parents' faces), and while this is far less important, I also can't visualize things.  It took me a long time to realize any of this was unusual (and the article on CAPD mentioned things I still never thought of as all that unusual, like my need to have people at work email what they want done so I don't forget it), and longer still to put a name to any of it, but knowing it's a thing serves no purpose beyond giving me a way to explain to people what's going on with me, and I think people are as likely to believe me with or without a doctor's verification. 

Good to know some insurance would pay for lip reading lessons, but I don't have the money for copays right now so I'll just tuck that in the back of my brain and hope it doesn't slip out before I improve my finances.  I read (on wikihow perhaps) you can teach yourself to lip read by watching newscasts and turning down the sound a little each day, so that seems to be the main thing I need to work on now.

Has any adult tried any of the treatments they have for kids?  It seems people do treat kids, but I suppose the adult brain may be too calcified to respons?


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