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fl-girl
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I'm trying to learn more about CAPD for my 5 year old son

My son is 5 1/2 years old and just started kindergarten about 3 weeks ago. He's been in speech therapy for about 18 months. He tests ahead for language, but quite behind for speech. He's come a long way in 18 months and he's adjusting to kindergarten just fine - although I have received call from his teacher because she says he has trouble listening to her. His ST mentioned that my son shows "some" of the signs for CAPD, but not all of them. She said he's a very confusing kid as far as speech goes - he has some very random patterns unlike anything she's seen. He has such issues with picking stuff up aurally though - he can't count past 12 because all the teen numbers seem to sound the same to him. He still can't remember our town name, street, phone number, etc. But my 3 year old son can remember... I've gone over it all with them equally - it's a game we play in the car - and the 3 year old remembers it, but my 5 year old cannot. He still gets confused over which yard is the front yard and which yard is the back yard. He calls the shed the "garage" and calls the garage the "shed" most of the time. Just today he lost a dice to his game and I told him to look under the couch. He ran over and looked under the table. He loves to talk and can carry on for hours about Star Wars or any other random fad of the moment so he's not quiet and withdrawn at al. He is still a bit hard to understand, but he's doing a lot better. Also, he gets in-front and behind confused all the time.... um...what else?... he seems to have an impossible time following directions or listening unless you hold on to him and speak directly to his face. He has very good behavior and we rarely have to resort to time out's - the problem is now that he's in school the teacher doesn't have time to sit down, get on eye level, make sure he's making eye contact with her and THEN tell him what to do...

I have read quite a bit online about CAPD, but can't figure out if my son's issues sound like CAPD or not???? His speech therapist says our insurance will cover testing on his 6th birthday, so we have about 4 1/2 more months until we can get him tested.

Any thoughts?

Thanks SO much in advance!

Kate



Edited By:  fl-girl
Sep-19-09 09:33:24

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duranie
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Re: I'm trying to learn more about CAPD for my 5 year old son

Some audiologists are unwilling to test kids as young and yours, you may have to call a few to make sure.  Don't have the school system do it, it's my experience with just having our 11 year old son diagnosed that they will look at the "screening", and determine if he needs help.  If we went through our school system and had it done, they would have looked at that screening and saw it looked within norms to them.  ONLY with further diagnosis was it seen the issues our son has, and only an audiologist with CAPD experience will know it.  I hope you get this done and have your diagnosis before we did, the earlier you catch this, the earlier you can start treatments.  Good luck, and keep us posted!


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Mom2Boys
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Re: I'm trying to learn more about CAPD for my 5 year old son

The reason they cannot test that young is most of the tests aren't normed for that age so they do not have statistics to compare. Although sometimes they can't test because the child cannot sit still. I would see if you could research and find an audiologist who will test under age 7. In the resources section of this site there are a handful: http://capdsupport.org/Resources/Audiol … age-7.html  You might try to contact these and ask if they know of one in your area. I know Dr. Lucker and Dr. Atkins both believe children can be tested as young as 5.

If nothing else, get your son to the audiologist for a full hearing test. Our son not only has CAPD, but was found to have a conductive hearing loss (which AIT corrected). The hearing loss probably contributed to CAPD and was most likely caused by continuous ear infections between 14 months and 3 years of age.

There is a screening test that our district audiologist administered which showed our son to have a "high" probability of having CAPD. It's called the "Differential Screening Test for Processing". It's not a diagnosis tool, but a definite indication if further screen is required. We had to do a lot of arm twisting to get the school to administer the screening, but when our son failed we knew we were on the right track. We then took him to the audiologist privately. Our son was 6-1/2 and our insurance did not cover it. I would investigate to make sure yours does, and if it doesn't find the money anyhow. The diagnosis got our son the FM system in class, and suddenly our child who they kept saying has ADHD didn't have attention problems any more.

Good luck and definitely check back in and let us know how it's going it!
Thanks,
Bonnie


Mom of 2 boys: James (6 & CAPD) and Michael (3)

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Hueyhome
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Re: I'm trying to learn more about CAPD for my 5 year old son

Hi, Kate!

Your son sounds just like our son smile  I think you're on the right track.  Until you can get testing done to confirm CAPD and set up an IEP, you're just going to have to hope his teacher is willing to give some additional time and effort into communicating with him.  Classroom environments are going to be more challenging than your home environment probably is.  Don't be surprised if some "behavior issues" start showing up in this new environment, and be sure he's got some stress-release built into his days as soon as he gets home.  It's likely to be exhausting (as well as frustrating) for him to be in a classroom, so having some "down time" when he gets home may be important for him.  But, you're already ahead of the game because you've got a good idea of what's going on, so you can help your son understand and develop some work-arounds and coping skills.

Blessings,

Mo


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duranie
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Re: I'm trying to learn more about CAPD for my 5 year old son

I'm not looking forward to dealing with this principal again.  The teachers have all been wonderful, but the principal at this school rubs me the wrong way.  She's got this arrogant attitude.  I called her to ask if President Obama's speech was going to be televised in school, and she got this snide attitude with me.  When she wasn't aware of what the Superintendent of Schools had said in the local newspaper, she said "I don't read this newspaper, I don't like it, and I think I'm very smart without having to read it".  What an attitude for a leader of a school to have, especially with a parent.  Admitting to not reading the local paper?  There is only one newspaper in this area, the one my husband works for. 

This had better not be her attitude when it comes to our son's IEP, because she won't want me to go over her head about it.  I'm not a nice person if someone messes with me.  I've dealt with people like her in the past, I'm trying to chalk this up to her having a bad day, but I've seen her since then and gotten the same "tude".  I don't care who I have to walk over, this will be done for him.


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