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collegemomof2
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Learning about myself

Hi,

I am a college nursing student with 2 very bright girls. I have been on a great journey to find out why my child is missing out on her education. This past October we learned the truth. She was diagnosed with CAPD and a few other small difficulties.

I grew up "dumb, clutzy, and antsy" I never paid attention or could follow directions. I figured my oldest just followed in my footsteps. I  knew she wasn't dumb or clutzy and I would never let her feel the way I did. In school it got to a point I had to home school (while going to college full time). I googled and I asked doctor after doctor..... I had her eyes checked and double checked (she got glasses but they barely helped)hearing checked (I am almost deaf at times)...God one day intervened. I met a 1st grade teacher..She said...Test her for this and handed me a paper. The light bulb appeared. I had it and I had no doubt CAPD was it. It described her to a T (ME TOO). 3 appointments and several doctors and therapists later and we had the diagnosis...CAPD.

We are learning from each other. I am learning more patience and a better way to help her in school. We are seeing OT and ST and also breaking up her school work. She only is a half a year behind now. I just wish I had been able to diagnose this earlier.

I have learned to be an advocate for my child. When glasses and time don't work...Follow your gut. Don't give up! Search...ask...pray...Just don't give up until you have your answer.


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Mom2Boys
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Re: Learning about myself

Wow, sounds like you have been on quite a journey of discovery! I have heard people say over and over they did not recognize their own challenges until they saw the same struggles in their children. I think this is particularly true for ADHD and dyslexia, which are often more challenging to diagnose. But good for your for sticking with your intuition and continuing to insist that something was amiss with your daughter. It's unfortunate that so many educators are totally unaware of CAPD.

In the library area there are articles about accommodations for the classroom. One of them is a handout for teachers: http://d93.k12.id.us/~sservice/CAPDhandout.html  You might just copy it and customize it with your daughter's specific challenges and give it to every teacher she works with. We did this for our son this year, and the teachers were grateful.

Now that you have figured this out, I know you'll be sharing it with other parents, and hopefully people will become more aware of the symptoms of CAPD so it is recognized earlier.

Have you begun any therapies for your daughter? Our son did AIT and has just started FastForward.

Take care,
Bonnie


Mom of 2 boys: James (6 & CAPD) and Michael (3)

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duranie
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Re: Learning about myself

Welcome to the club!  All of us seem to have some period where after talking to "specialists", we knew that they were wrong and our children's issues were something not yet diagnosed.  I'm so glad a homeschool speech pathologist put me on the right track with our son.  I don't know why this condition takes so long to get diagnosed.  I'd been asked many times by people if our son had hearing loss or head trauma as a child, which neither happened. 

A mother's instincts are better than any doctor's diagnosis.  Trust yourself, you'll know when you are being given the right answers.  That show "Mystery Diagnosis" on TV tells it all.  Those poor people and what they have to go through, sometimes decades of suffering and wrong diagnoses.  I'm so glad the internet is available, we can get so much more information ourselves rather than relying on doctor's and whatever they know.  Congratulations to you and your daughters.  The road from now on may not always be an easy one, but life will be so much easier for your girls with the strategies and treatments available now.  Please feel free to share your experiences when you can, I'll be posting our son's information today after we see his audiologist for his test results.  I'm anxious, nervous, but looking forward to helping my son make his school years easier for him to deal with.


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